I was diagnosed with RP in the late 70s when I was 26 years old. I suspected something was wrong after my son was born. I noticed that I had trouble backing my car up and judging distance.  It was ever so slight, so I   just put it out of my mind.

People kept telling me to have my eyes checked but I never went. It took getting smeared all over the road to get me to the eye Doctor.  A wonderful Dr. in downtown Flint gave me the news on my second visit. I just remember sitting there taking it all in matter of fact like. I remember going home calling my mom and telling her very stoney like and matter of fact. I also had a slight hearing loss since the age of six. I did not fully begin to understand what I actually had to contend with.  I hadn't a clue what Ushers syndrome was and I had never even  heard of it.  I got my first computer in Feb. 99, which allowed me to meet people on the internet and to do a lot of research.

I have always lived my life 24 hours a day and have never looked ahead, I may be wrong for that but it works best for me. Iam still learning and trying to take it all in. It has only been a few month since I made all these discoveries. I know I've gotta get a life out there somewhere.