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Member's ListClick on the links below to read Member's stories
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Dawn MarieMy name is Dawn Marie (Magooser), on the badeyes list. I found out I had R.P. at the age of 26. I have an older brother who has R.P. as well, but no one ever thought I had it. One day I was reading and I noticed "blank" areas, small and snakelike. A few months later I saw a doctor who said I "probably" had R.P. I figured he was full of shit. In the next few years I couldn't get a "true" diagnosis and I ignored my eyes. I had increased vision loss, but only in my right eye. I decided to have two kids and hope for the best. Then in 1999 I went to my eye doctor and he said I was legally blind and should not be driving. Boom! just like that . I couldn't believe it, and went to a specialist who also said I should quit driving. This meant I had to quit work as well. I applied for social security, and after a year, I finally got it. I hope to go back to school when my kids are older. Right now, I thank God for the opportunity to be at home with my children, I couldn't afford to otherwise. My youngest will be 2 in January and he had to get glasses last month. At first doctors thought we had a recessive gene in our family, which meant my kids should be O.K. But my niece found out in August she has it too. Now the doctors say it is a dominant gene. I have a strong feeling my son will have R.P. as well, and I am trying to deal with that now. I will not have him tested at his young age and I will try not to think about it |
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